11th European Conference on Rare Diseases & Orphan Products (ECRD 2022)

27. Jun 2022 — Register Here

The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest, patient-led rare disease event in which collaborative dialogue, learning, and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1500 stakeholders in the rare disease community – patient advocates, policy makers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators and Member State representatives.

This 11th edition follows a pivotal two-year Rare 2030 Foresight Study, supported by the European Parliament and European Commission, that guided a large-scale and multi-stakeholder reflection on rare disease policy in Europe through 2030. The concluding recommendation of Rare2030 was the need for a new European policy framework on rare diseases with measurable and actionable goals. Current actions at Member State level
alone, or legislative changes in specific areas are not enough. We need a new European collective strategy for rare diseases to bring Member States’ commitment to rare diseases under a common umbrella and mark a step forward in the post-COVID world.

This ECRD will be a critical opportunity for all stakeholders to consider how to transform this exhaustive review of the strategy on rare diseases into a proposal of concrete actions ultimately creating the ecosystem required to address the unmet needs and persisting inequalities across Europe.

EUCOPE is a partner for the event with our Secretariat participating on several panel discussions.

Alexander Natz will be speaking at the session “Keeping Europe attractive for therapies development for Patients Living With a Rare Disease”, chaired by Ruxandra Draghia-Akli and Simone Boselli

The event programme may be found online via this link.

Submit your Poster Abstract

Poster abstracts submissions for the ECRD 2022 are now open until 31st March 2022. lease read the information here on the Guidelines, Posters Scoring, Disqualification Criteria and Posters Themes before submitting your abstract.