Pendulum: Patient-centered and future-oriented care for rare diseases in Germany
26. Nov 2024 — Register here
The burden of rare diseases on patients, their carers and families, healthcare systems, and society overall, merits greater visibility and recognition.
Join Chiesi Deutschland (EUCOPE member) for an immersive and engaging multi-stakeholder discussion on the burden of care for rare diseases and the economic impact on German citizens.
The event will take place on Tuesday, 26 November – 16:00 – 18:30 CET, in Langenbeck-Virchow-Haus, 5. OG (Berlin, Germany)
Moderated by Ulrich Tilly, the speakers include:
- Stefanie N. Falkenburg, Senior Director, Rare Diseases, Germany, Chiesi Group2
- Prof. Sylvia Thun, Charité Mental Health
- Prof. Dr. Annette Grüters-Kieslich, Eva Luise und Horst Köhler Stiftung
- Prof. Andrew Ullmann (MdB – FDP)
- Linda Heitmann (MdB – Bündnis 90/Die Grünen),
- Erich Irlstorfer (MdB – CDU/CSU)
**Please note that the entire discussion will take place in the German language