News / Partnerships - August 2, 2022

EUCOPE co-signs letter calling for a European Action Plan on Rare Diseases

The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) joined the 57 partner organisations that co-signed EURORDIS’ letter calling on the European Commission to take forward the conclusions of the conference for a European Action Plan on Rare Diseases.

EUCOPE is a strong champion for a holistic and coordinated approach to rare diseases. As representatives of 140+ biopharmaceutical companies, many of which are active in the rare disease space, it is our goal to help bring our members’ innovative therapies to patients.

Our commitment to partner with all relevant stakeholders to address challenges and develop tailored policies all across the life cycle of rare diseases is in line with EURORIDS’ call for a strategic, cross-sectoral and crossborder approach R&D, legislation, diagnosis and care of rare disease patients.

You can find the letter here: