EUCOPE News by Category — Partnerships

Filtered by Category: Partnerships

News / Partnerships - March 29, 2022

OD Expert Group kicks off Phase 2

The multi-stakeholder European Expert Group on Orphan Drug Incentives (OD Expert Group) has officially announced the kick-off of Phase 2 of its work on 29 March, during the DIA Europe session on “The European Expert Group on Orphan Drug Incentives: a Blueprint for Health and… read more

Partnerships - March 25, 2021


Working group of European rare disease experts developed  nine principles to foster greater consistency in Value Assessment and Funding Process in rare diseases. The group explored the pricing and reimbursement systems for OMPs in selected European countries to analyse where they align with or diverge from… read more

Partnerships - March 25, 2021


Multi-stakeholder initiative commissioned by the Belgian National Institute of Health and Disability Insurance (INAMI-RIZIV) aimed at fostering stakeholders’ agreement of what real-world data (RWD) can be collected for highly innovative technologies, to generate real-world evidence (RWE) that informs decisions by healthcare systems, clinicians and patients…. read more

Partnerships - March 25, 2021

European Expert Group on OD Incentives

Multidisciplinary expert group including researchers, academia, patient representatives, investors and industry Input to strengthen the OMP Incentives Environment in Europe focusing on addressing unmet needs and supporting delivery of continued innovation where treatments exist; finding ways to optimise and accelerate OD regulatory pathways and identifying… read more