EUCOPE News by Category — Partnerships

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News / Partnerships / Press Releases - December 8, 2022

‘Rare Disease Moonshot’ – Scaling-up public-private partnerships to accelerate research into world’s rarest diseases

A new initiative to boost research and development into rare and paediatric diseases will launch today [Thursday 8 December] at the European Health Summit. The ‘Rare Disease Moonshot’ is a commitment and collaboration between seven organisations to break down the barriers to finding new treatments and cures… read more

News / Partnerships - March 29, 2022

OD Expert Group kicks off Phase 2

The multi-stakeholder European Expert Group on Orphan Drug Incentives (OD Expert Group) has officially announced the kick-off of Phase 2 of its work on 29 March, during the DIA Europe session on “The European Expert Group on Orphan Drug Incentives: a Blueprint for Health and… read more

Partnerships - March 25, 2021

OrphVal

Working group of European rare disease experts developed  nine principles to foster greater consistency in Value Assessment and Funding Process in rare diseases. The group explored the pricing and reimbursement systems for OMPs in selected European countries to analyse where they align with or diverge from… read more

Partnerships - March 25, 2021

RWE4Decisions

Multi-stakeholder initiative commissioned by the Belgian National Institute of Health and Disability Insurance (INAMI-RIZIV) aimed at fostering stakeholders’ agreement of what real-world data (RWD) can be collected for highly innovative technologies, to generate real-world evidence (RWE) that informs decisions by healthcare systems, clinicians and patients…. read more