Rare Disease Hub

EUCOPE works to strengthen the whole EU environment for the development of rare disease treatments.

With almost half of our members involved in the research and development of therapies for rare diseases, EUCOPE offers an opportunity for members to discuss the latest rare disease and orphan medicinal products‘ national and European legislative and policy developments without neglecting relevant global or international developments (North America & Asia). Wider membership can provide feedback and contribute to EUCOPE’s engagement on the OMP Regulation and validate the Incentives Steering Group’s approach.

Read below all the latest news regarding our activities on rare diseases, orphan medicinal products and the rare diseases community. For more information on our work on rare diseases, please contact Victor Maertens.