Rare Disease Hub
Read here all the latest news regarding our activities on rare diseases, orphan medicinal products and the rare diseases community. For more information on our work on rare diseases, please contact Vittoria Carraro.
EUCOPE Resources
July 8, 2021
Cross-border healthcare for ATMPs patients: Our Solutions
January 7, 2021
EUCOPE’s response to the Orphan Medicinal Products and Paediatrics Inception Impact Assessment
December 1, 2020
OMP Regulation: The Way Forward
November 25, 2020
EC Pharmaceutical Strategy – Time for a Modern Approach to Value
June 2, 2020
EUCOPE Response Statement – Pharmaceutical Strategy Roadmap
May 15, 2020
A 20th Anniversary Analysis of the EU OMP Regulation
April 6, 2020
Study: Economic & Financial Challenges of Developing Orphan Drugs
Events & Meetings
February 9, 2021
1st International Conference on Rare Diseases
December 2, 2020
Event Report: Case studies on rare disease therapies development
November 27, 2020
EMA Workshop on support for orphan medicines development
October 30, 2020
JOIN US: Case studies on rare disease therapies development – A laboratory of ideas for European innovation leadership
July 8, 2020
Event Report: What does it take for Europe to stay at the forefront of rare diseases innovation?
June 25, 2020
EUCOPE Webinar: Future of Rare Disease Innovation in Europe
January 23, 2020
EJP RD – Networking event for interested parties
July 16, 2019
EURORDIS Black Pearl Awards 2020: Nominations open!
May 7, 2019
EC Conference: “Medicines for Rare Diseases & Children: Learning from the Past, Looking to the Future”
Partnerships
March 25, 2021
OrphVal
March 25, 2021
RWE4Decisions
March 25, 2021
European Expert Group on OD Incentives
Press Releases
June 11, 2021
OD Expert Group unveils Policy Proposals to address Unmet Needs in Rare Diseases
January 7, 2021
EUCOPE’s response to the Orphan Medicinal Products and Paediatrics Inception Impact Assessment
November 25, 2020
EC Pharmaceutical Strategy – Time for a Modern Approach to Value
August 11, 2020
Evaluation of EU legislation on Orphan Medicinal Products (OMPs) and Paediatric Medicines
August 11, 2020
Press Release: Study on Orphan Regulation
July 7, 2020
EUCOPE response to the EC Pharmaceutical Strategy Roadmap
March 10, 2020