News - June 25, 2020
EUCOPE Webinar: Future of Rare Disease Innovation in Europe
EUCOPE invites you to an online discussion on the future of rare diseases innovation to the benefit of patients in Europe. Entitled ‘How can Europe remain at the forefront of innovation to the benefit of patients with rare diseases?’, the event will take place online on 8 July, 11.00 – 12.00 CET.
The COVID-19 pandemic acts as a magnifying glass for existing challenges related to rare diseases, in research, clinical trial continuation as well as in the availability of treatments and care. Building on an Office of Health Economics analysis on the economic and financial challenges of developing therapies for rare diseases recently unveiled at the 10th European Conference on Rare Diseases (ECRD), EUCOPE is organising a webinar to discuss future outlooks on rare diseases innovation to the benefit of patients in Europe. Using the report as a starting point, we will analyse new and existing trends impacting the rare disease community with the support of a multi-stakeholder panel of speakers including policymakers, patients, investors and small- to mid-sized pharmaceutical industry.
- Olga Solomon, DG SANTE, European Commission
- Jack Scannell, JW Scannell Analytics Ltd.
- Alexander Natz, European Confederation of Pharmaceutical Entrepreneurs (EUCOPE)
- Dimitrios Athanasiou, World Duchenne Organisation
- Thomas Bols, PTC Therapeutics
- Anna Bucsics, Mechanism of Coordinated Access to orphan medicinal products (MoCA)