EUCOPE Resources / News - February 22, 2023
Sounds of Science Podcast – Episode 13 Rare Disease Day 2023: Improving equitable access and diagnosis for people living with a rare disease Between 27 and 36 million Europeans experience living with a rare disease. Every Rare Disease Day â taking place on 28 February… read more
Member Spotlight / News - February 22, 2023
Every month, EUCOPE spotlights a member company and the great work theyâre doing to advance the life sciences industry and drive innovation to serve patients better. In February, we spoke with Sandra Nestler-Parr, Vice President, Value & Access, BioCryst Pharmaceuticals. Sandra Nestler-Parr is Vice President… read more
Events & Meetings / News / Press Releases - February 20, 2023
There is momentum for change. Join us to discuss how to make that change happen! The challenges we are facing today within rare diseases are complex and extensive. To understand and overcome these, we need to work together and share knowledge across countries, between expert… read more
Member Spotlight / News - January 25, 2023
Every month, EUCOPE spotlights a member company and the great work theyâre doing to advance the life sciences industry and drive innovation to serve patients better. In January, we spoke with Jameel Nazir, Vice President Patient Access and Community Engagement at Sobi â Swedish Orphan… read more
News / Press Releases - January 3, 2023
The European Confederation of Pharmaceuticals Entrepreneurs (EUCOPE) announced the joining of three (3) new Associate members on 1 January 2023. The new members joining EUCOPE network are: APCO Worldwide, RareLab and SKC. During the announcement, EUCOPE’s Secretary General Alexander Natz said, “The new year means… read more
EUCOPE Resources / News - December 21, 2022
Sounds of Science – Episode 11 2022 Year in Review: Our Policy team’s perspectives on the past year in EU Health and a look ahead to 2023 Throughout 2022, there have been successes, challenges, delays and change within the European pharmaceutical industry and we expect… read more
News - December 16, 2022
Sounds of Science Podcast â Episode 10 Launch Conditionality: The impact on small and mid-sized companies Within the European Commissionâs ongoing review of the General Pharmaceutical Legislation and Orphan Medicinal Products (OMP) Regulation, there are several potentially controversial policy options that aim to enhance access… read more
News / Partnerships / Press Releases - December 8, 2022
A new initiative to boost research and development into rare and paediatric diseases will launch today [Thursday 8 December] at the European Health Summit. The âRare Disease Moonshotâ is a commitment and collaboration between seven organisations to break down the barriers to finding new treatments and cures… read more
EUCOPE Resources / Events & Meetings / News - October 17, 2022
On 13 October 2022, Alexion held a high-level conference, as part of the âRare Conversationsâ event series, on rare disease policies at the Bibliotheque Solvay in Brussels. Alexionâs recent conference in Brussels, Rare Disease Policies 2022, was an insightful look into the possibilities for the… read more
EUCOPE Resources / Events & Meetings - October 3, 2022
On September 5, 2022, the European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) and Bundesverband der Pharmazeutischen Industrie (BPI) organised an online event on the revision of the EU regulatory framework for orphan drugs and its impact on Germany. The upcoming revision was discussed together with patient… read more
