EUCOPE has the pleasure to participate to the 1st International Conference on Rare Diseases organised under the patronage of H.E. the President of the Hellenic Republic. The event, entitled “Building a Pathway from Diagnosis to Access” will take place virtually on the first and second… read more
Aware of the complex European policy landscape that will keep policymakers busy in the months to come, EUCOPE wanted to discuss the European innovation leadership in the pharmaceutical sector and discover how the European Union and Member States can support pharmaceutical innovation in Europe. On… read more
On 30/11, the European Medicines Agency (EMA) will organise a virtual event to encourage early and efficient interactions with the regulators by highlighting pre-marketing support in medicine development in rare diseases. The meeting will highlight and explain existing tools in the context of early product development strategy…. read more
Pharmaceutical small to mid-sized companies and start-ups constitute a laboratory of innovation and should be nurtured through a forward-looking European incentives ecosystem that encourages the development of cutting-edge technologies. The upcoming EU health policy initiatives, including the Pharmaceutical Strategy for Europe and the impact assessment… read more
In the past two decades, a combination of scientific breakthrough coupled with strong incentives systems brought about great progress for rare disease patients. The number of medicines approved in Europe to treat rare diseases since 2000 increased from 8 to 169. However, with 95% of… read more
EUCOPE invites you to an online discussion on the future of rare diseases innovation to the benefit of patients in Europe. Entitled ‘How can Europe remain at the forefront of innovation to the benefit of patients with rare diseases?’, the event will take place online… read more
On the 3rd of March, in Paris, France, the Rare Diseases Research (RDR) initiative will organise a networking event for SMEs, academia and interested stakeholders to take part in research project targeting specific rare diseases challenges. Within the framework of the European Joint Programme on… read more
The nominations for the EURORDIS Black Pearl Awards 2020 are now open until 13 September 2019! The Black Pearl Awards is an annual event organised by EURORDIS, the alliance of more than 800 rare disease patient organisations, to recognise the outstanding achievements and exceptional work… read more
On 17 June 2019, the EU Commission (EC) will gather a large spectrum of stakeholders from the Member States, patients, academia, healthcare professionals and industry to collect their views on the successes and limitations of the regulatory framework for Paediatric medicines and Orphan Medicinal Products… read more