EUCOPE News


News - January 24, 2019

EURORDIS Multi-stakeholder Symposium, 13-14 February, Brussels

EURORDIS, the non-profit alliance representing rare diseases patient organisations will organise its 3rd Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies on 13-14 February 2019 in Brussels, Belgium. The event will bring together stakeholders from various backgrounds to… read more



News - January 10, 2019

EMA Public Consultation on Patient Registries

The European Medicines Agency (EMA) has released for public consultation a discussion paper on the use of patient disease registries for regulatory purposes – methodological and operational considerations. Patient registries are organised systems that use observational methods to collect uniform… read more