News - September 26, 2019
The Czech Ministry of Health recently announced that the Public Health Insurance Act 48/1997, which regulates the scope and conditions under which health services are covered as well as their pricing and reimbursement, would be amended. The foreseen amendments, expected to enter into force in… read more
News - July 16, 2019
The nominations for the EURORDIS Black Pearl Awards 2020 are now open until 13 September 2019! The Black Pearl Awards is an annual event organised by EURORDIS, the alliance of more than 800 rare disease patient organisations, to recognise the outstanding achievements and exceptional work… read more
Events & Meetings / News - May 7, 2019
On 17 June 2019, the EU Commission (EC) will gather a large spectrum of stakeholders from the Member States, patients, academia, healthcare professionals and industry to collect their views on the successes and limitations of the regulatory framework for Paediatric medicines and Orphan Medicinal Products… read more
