On 13 October 2022, Alexion held a high-level conference, as part of the “Rare Conversations” event series, on rare disease policies at the Bibliotheque Solvay in Brussels. Alexion’s recent conference in Brussels, Rare Disease Policies 2022, was an insightful look into the possibilities for the… read more
On September 5, 2022, the European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) and Bundesverband der Pharmazeutischen Industrie (BPI) organised an online event on the revision of the EU regulatory framework for orphan drugs and its impact on Germany. The upcoming revision was discussed together with patient… read more
Every month, EUCOPE spotlights a member company and the great work they’re doing to advance the life sciences industry and drive innovation to serve patients better. In September, we spoke with Johanna Grames, Senior Manager, International Government Affairs & Health Economics, AOP Health. Johanna Grames… read more
The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) hosted a virtual roundtable on the future of rare diseases in Europe and the Czech Republic on Monday, 20 June 2022. With the Czech Republic holding the rotating presidency of the Council of the European Union from July… read more
Sounds of Science – Episode 6 Overcoming Barriers: Improving Access for Rare Disease Patients through Cross-Border Healthcare The Cross-Border Healthcare Directive (Directive 2011/24/EU) marked a milestone for European patients. It created a legal framework for the patient’s right to seek healthcare in another Member State… read more
At EUCOPE, our commitment is to lead and engage in partnerships spanning the entire medicine lifecycle to find actionable solutions that benefit our members, the patients they serve and healthcare systems overall. Through our Partnerships in Focus series, we’ll be highlighting different associates that we… read more
Every month, EUCOPE spotlights a member company and the great work they’re doing to advance the life sciences industry and drive innovation to serve patients better. In May, we spoke with Ruediger Gatermann, Senior Director Health Policy & External Affairs Europe, CSL Behring. Ruediger Gatermann… read more
At EUCOPE, our commitment is to lead and engage in partnerships spanning the entire medicine lifecycle to find actionable solutions that benefit our members, the patients they serve and healthcare systems overall. Through our Partnerships in Focus series, we’ll be highlighting different associates that we… read more
The multi-stakeholder European Expert Group on Orphan Drug Incentives (OD Expert Group) has officially announced the kick-off of Phase 2 of its work on 29 March, during the DIA Europe session on “The European Expert Group on Orphan Drug Incentives: a Blueprint for Health and… read more
On our latest Sounds of Science Podcast, we discuss upcoming developments in the field of rare diseases, a timely matter as Rare Disease Day approaches on 28 February. Rare disease is a topic which is very close to the heart of our organisation, as almost… read more
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