Member Spotlight / News - May 30, 2022
Every month, EUCOPE spotlights a member company and the great work they’re doing to advance the life sciences industry and drive innovation to serve patients better. In May, we spoke with Ruediger Gatermann, Senior Director Health Policy & External Affairs Europe, CSL Behring. Ruediger Gatermann… read more
News / Partnerships in Focus - May 3, 2022
At EUCOPE, our commitment is to lead and engage in partnerships spanning the entire medicine lifecycle to find actionable solutions that benefit our members, the patients they serve and healthcare systems overall. Through our Partnerships in Focus series, we’ll be highlighting different associates that we… read more
News / Partnerships - March 29, 2022
The multi-stakeholder European Expert Group on Orphan Drug Incentives (OD Expert Group) has officially announced the kick-off of Phase 2 of its work on 29 March, during the DIA Europe session on “The European Expert Group on Orphan Drug Incentives: a Blueprint for Health and… read more
News - February 24, 2022
On our latest Sounds of Science Podcast, we discuss upcoming developments in the field of rare diseases, a timely matter as Rare Disease Day approaches on 28 February. Rare disease is a topic which is very close to the heart of our organisation, as almost… read more
News - February 23, 2022
EUCOPE’s Alexander Natz discusses the need for a holistic, integrated, and well-functioning EU environment to foster innovation and re-invest in R&D during the EURONEWS Debates. Rare diseases pose a significant challenge to the European health institutions. Due to the relative irregularity that people suffer from… read more
EUCOPE Resources / Events & Meetings / News - October 18, 2021
EUCOPE, in partnership with Sanofi, participated in the European Health Forum Gastein 2021 (EHFG) on 29 September in a session on rare diseases to discuss what is needed to stimulate basic research, clinical development, and access to care across the EU in light of the… read more
EUCOPE Resources / News / Press Releases - July 29, 2021
The European Commission is consulting stakeholders as part of its revision process of two major pieces of legislation, on medicines for rare diseases and paediatric patients. Central to the development of innovative treatments for these specific categories of patients, this revision process represents an important… read more
EUCOPE Resources - July 8, 2021
The complexities related to delivering some Advanced Therapy Medicinal Products (ATMPs) most likely will require highly specialized clinical expertise and infrastructures, which currently do not exist in all EU counties. Therefore, relocating or crossing borders often represent the only solution for many patients. A well-developed… read more
News / Press Releases - June 11, 2021
The multidisciplinary European Expert Group on Orphan Drug Incentives (OD Expert Group) has developed fourteen innovative proposals along the entire lifecycle of orphan drug development to address the unmet needs in rare diseases. With over ninety percent of patients without a centrally approved treatment option,… read more
News - April 26, 2021
On 7 May, the European Commission opened its public consultation on the revision of EU rules on medicines for children and rare diseases. The consultation, aimed at stakeholders and members of the general public, including patients and doctors, will explore several options to address the shortcomings… read more
